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Respite is defined
as "an interval of temporary relief or rest." Respite
care provides the primary caregiver time away from their care duties
to promote well-being for both the caregiver and person with ALS
and helps prevent caregiver burnout. It allows the primary caregiver
time for rest, an opportunity to participate in social activities
and/or to take care of necessary business, so that they can return
to caregiving with a renewed sense of well-being.
The Les Turner
ALS Foundation's Respite Grant Program is designed to provide families with limited resources funding to cover short-term respite care.
Disability level of the patient, number of additional dependents
in the home, insurance benefits and/or financial resources and caregiver
health will be taken into consideration in determining eligibility
for the Respite Grant Program. The Respite Grant Program committee
oversees the program and grant selection process to assure selection
decisions are fair and impartial.
To be considered
for participation in the program:
- The primary
caregiver must live with the person with ALS and complete and
submit a program application
- The family
must agree to a home visit by either the Foundation's Home Liaison
Nurse or Social Worker prior to funding
- Arrangements
for respite care must be made through the Foundation and prior
approval is required.
For more information
or to request a Respite Grant Program application, contact Claire
Owen, Director of Patient Services at cowen@lesturnerals.org
or (847) 679-3311.
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