Respite is defined as "an interval of temporary relief or rest." Respite care provides the primary caregiver time away from their care duties to promote well-being for both the caregiver and person with ALS and helps prevent caregiver burnout. It allows the primary caregiver time for rest, an opportunity to participate in social activities and/or to take care of necessary business, so that they can return to caregiving with a renewed sense of well-being.

The Les Turner ALS Foundation's In-Home Respite Care program is designed to assist those with the least resources to obtain such services. When requests for grants are greater than available funding, those who have the least ability to pay privately for respite care will receive awards. Disability level of the patient, number of additional dependents in the home, insurance benefits and/or financial resources and caregiver health will be taken into consideration in determining eligibility for the In-Home Respite Care program. The Respite Care committee oversees the program and grant selection process to assure selection decisions are fair and impartial.

To be considered for participation in the program:

• The primary caregiver must live with the person with ALS and complete and submit a program application
• The person with ALS must be a current patient at the Lois Insolia ALS Center
• The family must agree to a home visit by either the Foundation's Home Liaison Nurse or Social Worker prior to funding
• Arrangements for respite care must be made through the Foundation and prior approval is required.

For more information or to request an In-Home Respite Care application, contact Claire Owen, Director of Patient Services at   cowen@lesturnerals.org   or (847) 679-3311.