The third edition of the Les Turner ALS Foundation Resource Guide provides information and resources for ALS patients, family members, caregivers and health professionals. Assembled by the staff of the Les Turner/Lois Insolia ALS Center at Northwestern in Chicago and members of the Home Care and Community Services Team, the Resource Guide is available online for viewing, downloading and printing. If you wish to obtain a printed and bound copy, please contact Claire Owen at firstname.lastname@example.org or (847) 679-3311.
Reading all eleven sections at one time can be overwhelming to persons with ALS and their families. We highly recommend that you focus on the information that pertains to your present circumstances.
Section 1 - ALS Overview
Section 2 - Medications and Drug Research
Section 3 - Coping with ALS
Section 4 - Resources for Daily Living
Section 5 - Patient Care
Section 6 - Nutrition Support
Section 7 - Speech
Section 8 - Respiratory Care
Section 9 - Insurance, Financial and Legal Issues
Section 10 - Genetic Issues in ALS
Section 11 - Useful Resources
Please click here to download an extensive list of additional resources. This list is divided into seven sections: bereavement, books for and about children, cookbooks for ALS patients, disease management and coping, medical textbooks, personal stories, and DVDs. While some of these items may be out of print, you can often obtain them via your local library or retailers such as Amazon.com.
This list is provided as a service to the ALS community. The Les Turner ALS Foundation does not endorse or recommend information, products or services contained in these materials. You should contact an appropriate medical professional before making decisions about treatment.