Informative Links

The following web sites are listed as a service to the ALS community. The Les Turner ALS Foundation does not endorse or recommend information, products or services contained in these sites. You should contact an appropriate medical professional before making decisions about treatment.

Affiliates
ALS - National/International Organizations
ALS - Independent Organizations
Drug Trials and Registries
Vendors and Service Providers
Other Sites of Interest


Affiliates

International Alliance of ALS/MND Associations
www.alsmndalliance.org

Northwestern University Division of Neuromuscular Medicine
www.neurogenetics.northwestern.edu

Northwestern University Feinberg School of Medicine
www.medschool.northwestern.edu


ALS - National/International Organizations

The ALS Association
www.alsa.org

ALS Society of Canada
www.als.ca

American Academy of Neurology
www.aan.com

Dana Alliance for Brain Initiatives
www.dana.org/brainweb

MND Care (Australia)
www.mndcare.net.au

Muscular Dystrophy Association
www.alsmdausa.org

National Institute of Neurological Disorders and Stroke
www.ninds.nih.gov

National Organization for Rare Diseases (NORD)
www.rarediseases.org

World Federation of Neurology
www.wfnals.org

World Federation of Neurology's ALSUntangled Program
www.wfnals.org/alsu.html


ALS - Independent Organizations

The ALS Hope Foundation
www.alshopefoundation.org

ALS Therapy Development Institute (ALSTDI)
www.als.net

Matt White Cure ALS Foundation
www.cureals.org

Project A.L.S.
www.projectals.org

Ride for Life
www.rideforlife.com

Spastic Paraplegia Foundation
www.sp-foundation.org

The War on ALS - The Blazeman Foundation for ALS, Inc.
www.waronals.com


Drug Trials and Registries

ALSTDI's List of Open Clinical Trials
www.als.net/ALS-Research/ALS-Clinical-Trials/

Centers for Disease Control's National ALS Registry
www.cdc.gov/als

ClinicalTrials.gov: a registry of federally and privately supported clinical trials
www.clinicaltrials.gov

Nuedexta
www.nuedexta.com

Rilutek
www.rilutek.co
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Vendors and Service Providers

Augmentative Communications

Asyst
www.asyst.us

Dynavox
www.dynavox.com

E-triloquist
www.etriloquist.com

Illinois Assistive Technology Program
www.iltech.org

Woodlake Technologies
www.woodlaketechnologies.com

Bipap Users

Battery Geeks
www.thebatterygeeks.com

Battery Power Solutions
www.batterypowersolutions.net

The CPAP Store
www.cpapman.com

International Vent Users Network
www.ventusers.org

Radio Shack
www.radioshack.com

Sleep Comfort Care Systems
www.sleepcomfortcaresystem.com

Walmart
www.walmart.com

Grooming, Clothing, and Other Daily Living Tools

Adaptations by Adrian
www.adaptationsbyadrian.com

Allegro Medical
www.allegromedical.com

Buck and Buck
www.buckandbuck.com

Drugstore.com
www.drugstore.com

HDIS
www.hdis.com

Homedics
www.homedics.com

Oxyfresh
www.oxyfresh.com

Patterson Medical
www.pattersonmedical.com

Showerbuddy
www.myshowerbuddy.com

SkyMall
www.skymall.com

Trademark Medical
www.trademarkmedical.com  

Youcan Toocan
www.youcantoocan.com  

Home Construction and Modifications

Accessible Living LTD
www.accessiblelivingltd.com

Amramp
www.amramp.com

Best Medical Equipment
www.bestmedequipment.com

Discount Ramps
www.discountramps.com

DME Access, Inc.
www.dmeaccess.com

Extended Home Living Services
www.ehls.com

Illinois DHS Home Modification Resources
www.dhs.state.il.us

Mobility Systems & Solutions
www.4mobilitysystems.com

RampNOW
www.rampnow.com

Home Emergency Systems

Lifeline
www.lifelinesys.com

Home Physician Services

Home Physicians
www.homephysicians.com

MD at Home
www.866mdathome.com


Other Sites of Interest

Caregiving

CaringBridge
www.caringbridge.org

Lotsa Helping Hands
www.lotsahelpinghands.com

National Family Caregivers Association
www.nfcacares.org

Share the Care
www.sharethecare.org

Elder and Disability Law/End of Life Decisions

Advance Directive
www.makingyourwishesknown.com

Aging With Dignity
www.agingwithdignity.org

National Academy of Elder Law Attorneys
www.naela.org

Ethnic Groups

Casa Central
www.casacentral.org

Polish American Association
www.polish.org

Make-A-Wish Groups for Adults

Dream Foundation
www.dreamfoundation.org

Fairy Godmother
www.fairygodmother.com

Patient Interest

Ask About Aimee
www.askaboutaimee.com

Aventis - ALS Info Web Site
www.alsinfo.com

Patients Like Me
www.patientslikeme.org

Traveling with Disabilities

Emerging Horizons
www.emerginghorizons.com

Endeavour Safaris
www.endeavour-safaris.com