Since 1977, the Les Turner ALS Foundation has been Chicagoland's leader in patient services, research, and education for Amyotrophic Lateral Sclerosis (ALS), better known as Lou Gehrig's Disease, and other motor neuron diseases (MND).
2015 ALS Walk for Life
Join us Sunday, September 27 at Soldier Field for the 2015 ALS Walk for Life! Registration will open on Friday, May 1.
Senate Passes the Steve Gleason Act (S.984)
PALS win in the fight for access to SGDs! This morning the Senate passed the Steve Gleason Act (S.984) to ensure access to speech generating devices (SGDs). Under this bill, the ability to upgrade SGDs will be restored allowing people with ALS to access email, the internet and environmental controls. It also ensures people with ALS will keep their SGDs if they are admitted to a hospital, nursing facility or hospice. Thanks to all the PALS and families who wrote their senators in support of this legislation. And, a big thank you to Senator David Vitter (R-LA) and a team of bipartisan senators including our own Senator Mark Kirk for sponsoring this bill.
The legislation is being sent to the House of Representatives to be passed as soon as possible. The Les Turner ALS Foundation will be sharing updates as they are announced.
News from the Les Turner ALS Research and Patient Center at Northwestern Medicine
Read the latest eNewsletter with updates from the three labs and Lois Insolia ALS Clinic at the Center at Northwestern Medicine.
Les Turner ALS Foundation Family Day
Join the Les Turner ALS Foundation Patient and Family Advocates and Staff for an afternoon of bowling, pizza and special activities Saturday, June 14, 2015! The day will focus on fun and camaraderie for PALS, their children and grandchildren at no cost.
Click HERE to see the event flyer.