Since 1977, the Les Turner ALS Foundation has been Chicagoland's leader in patient services, research, and education for Amyotrophic Lateral Sclerosis (ALS), better known as Lou Gehrig's disease, and other motor neuron diseases (MND).
National ALS Registry - Surveys
The federal Agency for Toxic Substances and Disease Registry’s (ATSDR) has added two new online risk factor surveys to the National ALS Registry. These brief electronic surveys are for people living with ALS (PALS) to take so that researchers can learn more about the cause(s) of ALS. The clinical symptoms survey asks questions related the onset of disease. The open-ended comment survey gives PALS a chance to share what they think may have contributed to their disease. In order to take these or past surveys, PALS must be enrolled in the National ALS Registry.
The National ALS Registry collects information on people with ALS. Information in the Registry is being used to increase our understanding of who gets ALS and what factors affect ALS. The data in the Registry may help researchers and scientists as they seek the causes of ALS.
If you have questions about the National ALS Registry visit http://wwwn.cdc.gov/ALS/ALSFAQ.aspx
ALS Research Recognized
Les Turner ALS Foundation researcher Dr. P. Hande Ozdinler has been awarded over $2.5 million in grants to continue her groundbreaking research. The National Institute of Health (NIH) awarded Dr. Ozdinler with two grants while the third comes from the ALS Association. Learn More